Learning Disabilities and/or Autism

People with Learning Disabilities and/or Autism

NHS England (NHSE) and West Norfolk CCG
NHS England (NHSE) leads the National Health Service (NHS) in England and sets the priorities and direction of the NHS. It shares out the funding of the NHS and holds organisations to account in spending this money effectively and efficiently.
NHSE’s work involves the commissioning of health care services in England and supporting local health services led by Clinical Commissioning Groups (CCGs) (to include West Norfolk CCG) who plan and pay for local services such as hospitals and ambulance services.
More information about the NHSE and its role and work can be found on its website www.england.nhs.uk.


STOMP stands for 'Stopping Over Medication of People with a learning disability, autism or both, with psychotropic medications'.

STAMP stands for 'Supporting Treatment and Appropriate Medication in Paediatrics'.

Both STOMP and STAMP are national projects to help people to stay well and have a good quality of life.

Psychotropic medicines affect how the brain works and includes medication for:

  • psychosis (a severe illness that affects thoughts and emotions)
  • depression
  • anxiety

The medicines are sometimes prescribed for people because their behaviour is seen as challenging.

The medicines are right for some people, helping them stay well. Sometimes however there are other ways of helping people.

It is not safe to stop or change the medication without help from a doctor.

In West Norfolk, as part of the Sustainability and Transformation Partnership (STP), a standard operating procedure will be implemented and included in all provider contracts.

Currently, medication is reviewed as a part of Care Education and Treatment reviews (CETR’s) for children and young people.

For more information go to www.england.nhs.uk  

Please see the attached leaflet.

The Transforming Care programme

The Transforming Care programme is about improving health and care services so that more people with learning disabilities, autism or both can live in the community, with the right support and close to home.

Assuring Transformation data (AT data)

NHSE collects information about people with learning disabilities, autism or both who are getting care in hospitals for their mental health or because they have had behaviour that can be challenging. It gives commissioners (such as West Norfolk CCG) broad oversight of their care.
This information is called ‘Assuring Transformation data’ (‘AT data’) and is collected every month from the CCGs to include West Norfolk CCG. It does not contain any personal information like names or birthdays. It is collected to ensure that people with learning disabilities and/or autism are not in hospital if they would be better looked after in the community.
Right to object 
An individual has the right to object to their information being used in the AT data collection and their objections considered. Patients in hospital who do not want details about their care to be included in the AT data need to tell West Norfolk CCG as their commissioner. West Norfolk CCG has a process for managing the objections received. (See Further Information section below).
Further information
NHSE’s easy read leaflet ‘What is Assuring Transformation?’ gives more information including what to do and who to contact if an individual does not wish details about them to be included in the AT data collection – the leaflet can be viewed here.
NHSE’s guidance for commissioners (to include West Norfolk CCG) about AT data and managing individual objections gives more information to include:
  • Why the AT data is collected

  • What the AT data covers

  • The legal framework to include requirements

  • The process for managing objections

The AT data and managing individual objections guidance can be viewed here.
Privacy Notice
For more information about how patient information is used in the NHS follow this link on our website.
Learning Disabilities Mortality Review (LeDer) Programme
For information about the Learning Disabilities Mortality Review (LeDer) Programme follow this link on our website.
To view the Norfolk and Waveney Learning Disability Mortality Review Programme - Easy Read, click here.